Monday, November 23, 2009

Negative Nancy.

From Lynette
Another day of ups and downs. Woke up this morning with a pit in my stomach having no clue what the doctors decision would be if we would be able to make our flight tomorrow or not. This morning after arriving we learned that she had a stable night and has been stable throughout the morning.

The opthamologist came and said he was happy with the results of her laser surgery and will come back to look at her eyes again in five days from now if we can't return to the States.

Around 9:00 a.m. they did a lumbar puncture to remove 10 ml of CSF fluid to help relieve some of her intracranial pressure and also to evaluate how well she is responding to her antibiotics. The team of one doctor and two nurses who would be traveling to the States with us came to look at her around noon and told us based on her vital signs that they think everything is a go. They said they just needed to evaluate the results of the CSF fluid. So, about one hour later they returned with the results with a concerned look on their faces. Apparently the glucose level was very low, and protein was higher than it should be. They didn't think she was fit to fly. They said they would consult with the infectious disease specialists to get a final opinion.

The team of infectious disease specialists said they were concerned about us not having a ventilator onboard the aircraft in the case of Olive having continued apnea. They also worry that if the meningitis continues to progress that she will start having more frequent seizures. They told us that meningitis can cause deafness, severe developmental problems, as well as seizure issues in SOME cases. Not very comforting news to hear.

So...all of the doctors involved in Olive's case are telling us she cannot fly. We had our hopes up so high to have Olive at such a great hospital, and to be near family and friends as we continue walking through this journey.

So here we are...lots of tears today, anger, and disappointment.

Today I'm feeling angry at God, and wondering why there continues to be more and more bad news. I can see lots of ugly places in myself too in all of this. I want to be grateful for the good things He is the positive report on Olive's eyes, and the simple fact that we are included in the small percentage of people in this world to have access to this level of healthcare.

I do miss my close friends that could just sit down beside me and grumble with me.

love to all of you...


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